Research
When the Cystinosis Research Foundation was established, one of our goals was to improve the quality of life for children with cystinosis. Finding more effective treatments for cystinosis was the key to that goal. We have aggressively pursued new and cutting-edge research by pursuing the best and the brightest scientists. The CRF approach to research is interdisciplinary and multi-faceted. We prioritize collaborations and cystinosis research studies that result in human clinical trials. We are increasingly focused on the clinical and translational research crucial to making the necessary strides toward a cure for cystinosis.
Cystinosis Research Overview
The Cystinosis Research Foundation’s mission is two-fold and focused: to find better treatments and a cure for cystinosis. Funding quality research studies remains a priority and is an ongoing process.
Learn more about cystinosis research efforts »
Grants Awarded
Since 2003, the Cystinosis Research Foundation has funded more than $12.9 million in cystinosis research, making the CRF the largest provider of grants for cystinosis research in the world. CRF is currently funding 48 research studies including thirteen research fellows. Our researchers are working in seven countries around the world to find better treatments and a cure for cystinosis.
Clinical Studies Volunteers
Over the past few years there have been new cystinosis research developments and significant advancements in the treatment of cystinosis. Dr. Ranjan Dohil’s research study funded by CRF at the University of California, San Diego (UCSD) has resulted in the development of a slow-release form of cysteamine.
Participate as a patient volunteer »
Research Updates
Read the latest cystinosis research updates »
Published Studies
Read and print published studies on cystinosis »
International Research Symposium
SAVE THE DATE
The Cystinosis Research Foundation is proud to announce that the Third CRF International Cystinosis Research symposium will be held on Thursday, March 29 and Friday, March 30, 2012 at the Beckman Center of the National Academies of Engineering and Science, Irvine, California. For additional information contact Nancy Stack, nstack@cystinosisresearch.org.
The second CRF International Cystinosis Research Symposium was held Thursday, April 8, and Friday, April 9, 2010 at the prestigious Arnold and Mabel Beckman Center of the National Academies of Engineering and Science on the UCI campus. More than 60 researchers from the United States and Europe who have been working to achieve better treatments and a cure for cystinosis attended, and 39 presented their current research.
